Things We’re Learning

What we think we know about Shiloh so far: She will be born with a bilateral cleft lip and palate. Part of the front of her brain is fused which makes the doctors suspect some variation of Holoprosencephaly, we will not know exactly until she gets an MRI sometime after birth. There appears to beContinue reading “Things We’re Learning”

Week 29

August 26 appointment Last week we had another appointment with the MFM doctor. This one felt more standard as we haven’t had any testing to get back between appointments. We did an ultrasound and got to hear Shiloh’s heartbeat, beautiful and strong (Zachery got to listen in via facetime from the car). Shiloh is stillContinue reading “Week 29”

Weeks 20-25

Here’s a recap of the last 9 weeks: Going back and thinking through all the details that have been the whirlwind of the last 9 weeks is as much for my benefit as anyone else’s! We have received much information (as in, more than we’ll probably be able to process), experienced many highs and lows,Continue reading “Weeks 20-25”

Welcome

Hi all, We’re so happy you’ve found this space to share in Shiloh Joy’s story. Many of you know that our second daughter is due November 10th and our doctors have found some abnormalities in her brain development. While sharing can be really difficult sometimes, especially as we are processing things ourselves, we feel veryContinue reading “Welcome”